Sudden unexplained death in epilepsy is where someone with epilepsy dies suddenly and unexpectedly usually unwitnessed. It is unexpected when considered in terms of the individuals general health. In SUDEP the person usually dies in their sleep and no obvious cause of death can be detected

Sudden death can happen in the general population but people with epilepsy are known to have a mortality rate two to three times higher than that of the general population. In 1998 national mortality statistics recorded 963 deaths in the UK. In some cases the cause of death was evident. Some deaths were due to accidents, drowning or to status epilepticus however an estimated 500 annually do not have a clear cause.

Research similar to research being carried out in sudden infant death is being commissioned to gain more information in to the cause of this particular syndrome.

causes of SUDEP

The exact cause of SUDEP has not been identified but it thought to be linked to a misfiring of neurones producing messages which are sent to the part of the brain responsible for the heart and breathing sometimes resulting in a fatal cardiac or respiratory event.

who is at risk?

SUDEP can occur in anyone with epilepsy some evidence suggest that certain individuals may have a higher risk factor.

Those with poor compliance

Those whose seizure control is poor

High alcohol intake can increase the risk factor

Generalised seizure occurrence

Sudden changes or withdrawal of medication

Young adults.

Precaution should be undertaken to diminish the risks of SUDEP and where possible seizure risks should be avoided.

reducing the risks

Prompt diagnosis and treatment.

Compliance with prescribed medication

Ensuring adequate rest and sleep

Avoiding alcohol

Avoidance of known triggers

Optimum seizure control where possible by ensuring the above will assist in lowering the risk factors.

contacts

epilepsybereaved@dial.pipex.com

www.sudep.org